Sunday, May 15, 2011

Where We Are and What's Coming....

HELP Hope4Harper RAISE $7,740

We are so grateful for the outpouring of support we have received thus far.  Harper, however, has a long way to go.  Our $7,740 goal will help cover medical expenses for Harper through August of this year.  The Hope4Harper fund currently has $780. 

PLEASE CLICK ON THE DONATE BUTTON ABOVE 
TO DONATE NOW

Harper’s upcoming costs include:

·      $1440 - Austin ABM Therapy (travel cost not included)
o   May 14th – May 18th
·      $700 – Austin ABM Therapy (travel cost not included) 
o   June 10th – June 12th
·      $5000 – California ABM Therapy (Austin not available)
o   Mid August (7 Days)
·      $600 – Prescription Formula for seizure control
o   Ketogenic diet trial (not covered by insurance)

We have two upcoming fundraising events:  

Hope4Harper Garage Sale on May 21st 
at 4603 Dusk Meadow Dr. Carrollton, TX 75010.  7:00am  - 4:00pm

Mary Kay Party for Hope4Harper on May 27th 
at the MK Beauty Studio, 2300 Rockbrook Drive, Suite 200, Lewisville TX 75067.

Any participation in these events is more than welcome.  We encourage you to bring friends to either event and/or help by spreading the word through your network of friends and family.  If you are unable to attend either of these events, your monetary donation is appreciated.  
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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!