Monday, June 27, 2011

What is easy for God is most often hard to Believe!

Thanks to an amazingly large and caring family this verse is sticking with me these days: 


Mark 11:22-24
"'Have faith in God,' Jesus answered. 'I tell you the truth, if anyone says to this mountain, 'Go, throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him. Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours."


Harper is showing amazing signs of improvement thanks to your continued prayers and her intense therapy we have been able to provide because of your support.  In the last week we have noticed she is not mouthing her hands as very much (sucking on her fingers). This is allowing for her to take time and explore the world around her through touch.  The therapists today said she is showing fabulous improvement in head control and her desire and ability to sit more upright.  We are still fine tuning the diet and are seeing some success in better seizure control.  Harper is also showing more and more signs of her ability to understand what we are communicating to her.  "Arms Up" was just the beginning!
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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!