Monday, August 1, 2011

REMINDER!!


Well this is it!!!  The week of Harper's Big Event.  Her Auction Fundraiser will be on Friday August 5th at Community Life Church in McKinney (601 S. Graves St) at 6pm.  

We are raffling an IPAD2 (tickets available on this site: 1 for $10 or 3 for $20)  You do not have to be present to win you just have to purchase a ticket! ;) 



Our Live Auction items include: 
  • Radio Flyer Spring Horse
  • multiple pieces of Art and Furniture
  • 2 Wii game systems
  • Digital Camera
  • Professional on site Photography Session
  • Kid Kraft play sets for girl and one for boy 
  • Kindle Book
  • Ladies Day Gift Pack
  • Couples De-Stress Pack
  • Riccar Vacuum
  • Toilet plus installation
  • Cosmetic Procedures
  • Dental Whitening
  • Drive Your Dream Ferrari for one hour
  • IPOD Touch with Professional ear buds
  • Taylor Swift Concert Pack  

Plus we have over 30 items for our Silent Auction such as: Gift Certificates for various restaurants, hair salons, photography studios, fitness programs, massages, cleaning services, home decor and much much more!  Please feel free to invite all that you know as it should be a very entertaining and fun family event!  We hope to see many of you there! 


SIDE NOTE: 
On Saturday August 13 just in time for back to school shopping, Chick Charm in downtown McKinney is hosting a shop day and will stay open late just for Harper!  A portion of proceeds  from that day will go to benefit Harper so if you have little girls and want a new outfit for back to school, holidays or just for fun, August 13 is the day to buy it and Chick Charm is the place to get it from!  
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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!