Saturday, August 6, 2011

WINNER WINNER CHICKEN DINNER!!

SPECIAL THANK YOU!!!

Last night was AMAZING!!!  We are so blessed to have such loving and supportive friends and family.  This event would not have come together without you.   
Harper's Auction Fundraiser raised $8462

Holly and Tanner thank you so much for your willingness to entertain us last night with your friends.  For those of us from the city...it was awesome!  You really made the event a success!  

Mom and the Kohls Team (Barbara, Maria, Rosemary, Shelly, and Cindy)  thank you for your willingness to volunteer your evening so that IFCR could gain $500 from the Kohls Cares for Kids program.  

Dad and Melony your decorations were beautiful and made the room and thank you for helping make the location easier for our guests to find.  

Shirley and Gilbert thank you for caring for Harper and Lily over the last five weeks so we could get this event organized and pulled together.  

Deanne, Michelle, Angie, Nikki Baker, Carla, and Pat thank you for all your baking and cooking.  The refreshments were tasty!  

Laura shame on you for disclosing stories of our pageant days ;) but thank you so much for coming early and staying late.  Your help was appreciated and your coffee turned out great!  

Gwen thank you for helping get the coordination of this event organized.  

Elizabeth  thank you for your attendance and artistic ability to capture the moments during this event on film.  

Kathy and Preston thank you for your attendance and efforts in gaining awareness of Harper's condition and of her event.  The gourd you painted especially for her is beautiful and will be cherished for a lifetime.  

Thank you to all of those companies and individuals that kindly donated auction items, without you we would have only had refreshments! ;)  We also want to recognize AlphaGraphics of Carrollton for everything they have done for our family since learning about Harper and her condition.  They have been a huge advocate for Harper's Cause.  

Leslie and Maura thank you for securing the location for this event to take place and a special thanks to both of you for your help the last two days.  We would not have been able to pull this together without you. Also a big thank you to Community Life Church of McKinney, TX for allowing us to use your facility.

Again a very SPECIAL THANK YOU to all of you who attended this event!  Without you and your support it would have been a room full of stuff and food!  Your attendance is what made this event a success!  Thank you for spending your Friday evening with us!  I hope you were all able to meet Harper and her Big sister Lily.  

Finally, what everyone is wanting to know!  Who won the IPAD2? 



 Ticket Number 219017

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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!