Sunday, March 20, 2011

Second Round of Anat Baniel Treatments

It's our second day of our second round of treatments at the Anat Baniel Center in San Rafael, California and Harper is doing amazing!  She is becoming more aware of her body and how it can move.  She has been practicing on rolling from her tummy to her back and also exploring the feel of her feet and legs.


Neil Sharp, MD

Anat Baniel (creator of this transformational method)

Sylvia Shordike
For those new to our sight let me give a brief background.  Harper was born April 12, 2010.  Three weeks after birth our family noticed Harper having seizures.  We have spent the last 11 months visiting many doctors all over the US trying to determine the cause of Harper's seizures and developmental delays.  In February we discovered that Harper has an extremely rare genetic disorder known as CDKL5.  Currently there are only 300 diagnosed cases in the world.  Her diagnosis requires intense therapy and seizure control in order to overcome her delays.  We have found a wonderful form of intense therapy in California at the Anat Baniel Center.  We are currently working on approval for and scheduling of local treatments in the Dallas area that will hopefully be just as beneficial.
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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!