Monday, May 30, 2011

Mary Kay for Harper

Even Lily participated in girls night!! She just loves her lipstick!  Thank you all for coming to support Harper this last Friday.  I hope everyone had an enjoyable time and enjoyed your microdermabrasion and Vitamin facial.  For those of you who were unable to attend but would still like to help Harper you can order by midnight tonight at www.marykay.com/september and type Hope4Harper in the comment section.  You can also contact September, the Mary Kay representative, and book a party of three or more people and Harper will get an extra $25 and you can enjoy your 50% purchases from your party!  Time is running out to help Harper using this Mary Kay event so please take a moment to order online, book your party or both today!  Happy Memorial Day!!


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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!