Wednesday, June 1, 2011

Almost There

Hope4Harper's Mary Kay Party made $300!  Thank you to all who helped to make this possible through your attendance and your orders.  A special thank you to September James our Mary Kay representative for donating your time and your product for the fun, successful party.  

Thanks to every ones support of Harper she has $4043 of her $7740 summer time goal.  Hope4Harper is now working towards the last remaining $3697 to reach that goal.  We currently have only one fundraiser booked, the Silent Auction Dinner, and that will not be until early August.  Details on this event will be posted later.  If you are interested in coordinating a fundraiser for Harper between now and August please let me know how we can help.  

Again, Thank you all so very much for loving Harper almost as much as we do!   
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1 comment:

  1. CarlaJune 1, 2011 at 9:32 PM

    Who couldn't love that special gift from God!

    ReplyDelete

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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!