Sunday, July 17, 2011

CAR WASH THANK YOU!






JULY 16, 2011
Thanks to David, Erin, Michael Robason and their awesome group of friends the Car Wash in honor of Harper was success!  These extremely caring kids who gave up a Saturday in the Summer for Harper were able to raise $409!  What a long HOT morning!  Thank you all so very much...you truly are wonderful individuals with thoughtful hearts! 

My mom's Co-Worker Barbara, and her daughter, Angelica were also part of this team!  Great sexy girls that worked the street with our signs to bring in the business!  :)  What a HOT and dangerous Job that was at a very busy location! Thank you also for giving up your Summer Saturday morning for Harper!  I am so glad my mom is friends with such an amazing family! 

I want to shout out a special thank you to Market Street located at Eldorado and the Tollway for allowing the Car Wash to take place!  They not only let us use their water but they gave up parking lot space for Harper's event!  This may not seem like that big a deal but from a business perspective it's HUGE, there are lots of safety issues and regulations they had to deal with in order to allow this happen!  We Thank You for your generosity!  

A BIG Thank You to all of you who spread the word of the event and came out to support Harper yesterday!  Without you we would have just been a large group of sweaty people!  ;)  You and Your effort is really what made yesterday a HUGE success! 

We will not know about the success of ChickFila until next week. 
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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!