Tuesday, July 12, 2011

Help 4 Harper

I have three weeks and NEED some HELP PLEASE PLEASE PLEASE! First print a copy of the Auction flyer located on this site.  For the Auction Fundraiser I need at least 25 of each of the following: 







1) Live Auction Items - This is where I NEED THE MOST HELP! (Have 4 Looking for 21 more) these are your bigger ticket items.  If you have something sitting in your garage or attic or know someone who knows someone please write them about Harper's story and see if you can get anything donated, antiques, coke machines, furniture, Large Children's toys, sporting equipment, autographed balls, hats, bats, shoes, shirts etc... concert tickets, hotel stays, college memorabilia, Art (If you paint or draw frame it and we'll sell it) and the list goes on.    

2) Silent Auction Items (have 10 looking for 15 more)- if you are out anywhere (lunch, dinner, movies, water park, oil change) just ask to speak to the manager and see if they would be willing donate anything to be auctioned. Show them the flyer and most will accommodate.  

3) Precooked frozen casseroles in 9 x 13 pans your version of the following: 9 Lasagnas, 9 Mexican Casseroles, and 9 Chicken Spaghetti Casseroles.  No specific recipe to follow your version of either will be great.  We will be selling these pre made family meals at the event for $20 each! There great for that night you just don't want to cook! Heat and Eat and remember that meal helped a baby....can't get better than that!

4) Lastly I need some volunteers to help at the event itself.  I have 5 so far and need at least 10 more.  

Then we just need to SPREAD THE WORD!  Tell all you know to come and bring the family for a fun little friday night event to help baby Harper! 

Please contact me and let me know what you are able to help with!  For those of you already helping THANK YOU!  I couldn't have gotten this far without you! ;) 
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HARPER ELLE HOWARD - Her Story

Harper Elle Howard was born April 12, 2010 and at just three weeks old, began having seizures. Over the course of 10 months, Harper traveled across the US and underwent a multitude of tests. In February 2011 she was diagnosed with a rare and in some cases life threatening genetic disorder known as CDKL5. There are currently fewer than 300 cases worldwide. Those affected suffer from intense seizures, sensory issues, gastrointestinal difficulties, visual impairment, scoliosis, along with severely delayed developmental growth. For more information on this disorder please visit www.cdkl5.com. The severity of Harper’s particular case is unknown, but we remain hopeful. She has been prescribed intense therapy and seizure control to aid in successful mental and physical development.

Hope4Harper is an organization started to aid in her care. You may choose to help Harper directly with her expenses and although not a tax-deductible, ALL monies generated are used to provide Harper care that might not otherwise be available to her. Option two is a tax deductible option through The Children’s Hospital of Boston. Hope4Harper is working with Dr. Frances Jensen and her team at The Children’s Hospital of Boston on a seizure research project seeking out the best way to stop seizures in CDKL5 affected children. Please view the CHB Project page for more details.

Your support is greatly appreciated and we ask that you keep Harper in your daily prayers, continue to follow her progress and the progress of the seizure research project, as well as, share her story. With your help there WILL be a cure!